Repository logo

Browsing by Author "Khanlou, Nazilla"

Now showing 1 - 3 of 3
  • Thumbnail Image
    Item
    Health inequities experienced by people with developmental disabilities
    (2022) Khanlou, Nazilla; Khan, Attia; Vasquez, Luz Maria; Nunes, F.; Felice, S.; Gateri, Hellen; Srivastava, R.; McMillan, S.; Francis Xavier, J. M.
    The overall purpose of our project is to develop guidelines and recommendations to guide nurses and other service providers as how to deliver effective quality nursing care for persons with DDs. In this Information Sheet, we report on the findings of a survey conducted with nine young adults with DDs, (with the assistance of their caregivers, as needed) to gather the views and perceptions of these youth about their nursing care experiences. A trained interviewer conducted the surveys via an online video platform (Zoom Pro). The participants were six females and three males, between the ages of 16 and 25 years. The DDs impacting these youth included Autism, ADD, cerebral palsy, cortical visual disabilities, global developmental delay, PDD-NOS along with a gene mutation, Fine-Lubinsky syndrome and Dravet syndrome.
  • Thumbnail Image
    Item
    Policy brief: Guidelines to address pandemic health disparities experienced by racialized families with developmental disabilities
    (2023) Khanlou, Nazilla; Khan, Attia; Pashang, Soheila; Vazquez, Luz Maria; Gateri, Hellen; Hutchison, Nerissa; Ohiku, Titilayo
    This policy brief was developed as part of the project titled Equity-informed intersectoral KMb to address pandemic health disparities experienced by racialized families with developmental disabilities.
  • Thumbnail Image
    Item
    Social support for racialized families of children and youth with developmental disabilities: COVID-19 pandemic inequities
    (2023) Khanlou, Nazilla; Khan, Attia; Vasquez, Luz Maria; Pashang, Soheila; Gateri, Hellen; Ohiku, Titilayo; Hutchison, Nerissa; Alawiye, R.
    People with disabilities face increased risk for exposure, complications, and death from the recent COVID-19 public health emergency (Shapiro, 2020; Turk et al, 2020). The pandemic lockdown, with disruption of services and support (Chung, 2020) and accessibility barriers to prevention and response measures (Eshraghi et al., 2020), increased the challenges associated for people with developmental disabilities (DDs) (Ameis et al., 2020). Racialized people with disabilities (including DDs), further face systemic disadvantages across their social determinants of health (John et al., 2016); the interlocking barriers to care position them at a high risk of the effects of the COVID-19 pandemic. Our research findings suggest that social support mitigates the effects of stressors for families to promote the wellbeing of children / youth with DDs leading to positive outcomes (Khanlou et al., 2022; Khanlou et al., 2015). Lack of data on the effects of the recent pandemic on people with DDs results in the inability of health surveillance systems to accurately determine the impact of the pandemic on marginalized populations and support needed (Turks et al., 2020). Increasing calls from racialized communities and disability advocates, scholars, and practitioners urge for the need to generate more data on the pandemic experiences of racialized people with DDs.