Rogers, SeanFrench, Darcy2022-06-302022-10-122022-10-122022https://hdl.handle.net/20.500.14078/2726Presented on April 21, 2022 at Student Research Day at MacEwan University in Edmonton, Alberta.Prader Willi Syndrome (PWS) is a rare genetic disorder affecting approximately 1 in 15000 live births worldwide that presents a spectrum of physiological and neurological-related health challenges. PWS has been extensively studied as it affects parents, however, research on sibling interaction is limited. This study examined to what extent neurotypical siblings with a brother or sister with PWS experience stress in daily life, is there a feeling of growth as a result, and are feelings of burden higher when compared to the general population. Using the Perceived Stress Scale 10, the Post Traumatic Growth Inventory, and the Zarit Burden Interview questionnaires, a comparison between families with a neurotypical -PWS sibling dynamic and non-PWS – sibling dynamic was conducted. The findings between the control and experimental groups indicated similar stress levels, and both groups indicated a moderately high level of stress. No statistically significant difference in personal growth was present. The perception of burden was significantly higher for the neurotypical-PWS group versus the control group. The details of the results indicated that the relationship dynamic between PWS-neurotypical siblings requires further research, and the use of different survey tools may be warranted to better explore this population.395.86KBPDFenAll Rights ReservedPrader-Willi syndromesiblingsstressatypical developmentburdengrowthIt’s a burden but… having a sibling with Prader Willi syndrome: stress, growth, and perceived burdenUndergraduate Thesishttps://doi.org/10.31542/r.2726