It’s a burden but… having a sibling with Prader Willi syndrome: stress, growth, and perceived burden
| dc.contributor.advisor | Rogers, Sean | |
| dc.contributor.author | French, Darcy | |
| dc.date.accessioned | 2022-06-30 | |
| dc.date.accessioned | 2022-10-12T21:20:24Z | |
| dc.date.available | 2022-10-12T21:20:24Z | |
| dc.date.issued | 2022 | |
| dc.description | Presented on April 21, 2022 at Student Research Day at MacEwan University in Edmonton, Alberta. | |
| dc.description.abstract | Prader Willi Syndrome (PWS) is a rare genetic disorder affecting approximately 1 in 15000 live births worldwide that presents a spectrum of physiological and neurological-related health challenges. PWS has been extensively studied as it affects parents, however, research on sibling interaction is limited. This study examined to what extent neurotypical siblings with a brother or sister with PWS experience stress in daily life, is there a feeling of growth as a result, and are feelings of burden higher when compared to the general population. Using the Perceived Stress Scale 10, the Post Traumatic Growth Inventory, and the Zarit Burden Interview questionnaires, a comparison between families with a neurotypical -PWS sibling dynamic and non-PWS – sibling dynamic was conducted. The findings between the control and experimental groups indicated similar stress levels, and both groups indicated a moderately high level of stress. No statistically significant difference in personal growth was present. The perception of burden was significantly higher for the neurotypical-PWS group versus the control group. The details of the results indicated that the relationship dynamic between PWS-neurotypical siblings requires further research, and the use of different survey tools may be warranted to better explore this population. | |
| dc.format.extent | 395.86KB | |
| dc.format.mimetype | ||
| dc.identifier.doi | https://doi.org/10.31542/r.2726 | |
| dc.identifier.uri | https://hdl.handle.net/20.500.14078/2726 | |
| dc.language | English | |
| dc.language.iso | en | |
| dc.rights | All Rights Reserved | |
| dc.subject | Prader-Willi syndrome | |
| dc.subject | siblings | |
| dc.subject | stress | |
| dc.subject | atypical development | |
| dc.subject | burden | |
| dc.subject | growth | |
| dc.title | It’s a burden but… having a sibling with Prader Willi syndrome: stress, growth, and perceived burden | en |
| dc.type | Undergraduate Thesis |
Files
Original bundle
1 - 1 of 1
Loading...
- Name:
- It’s_a_burden_but…_having_a_sibling_with-_2022_roam.pdf
- Size:
- 395.86 KB
- Format:
- Adobe Portable Document Format